Cerebral arteriovenous malformation... hemiparesis?
Five years ago, I was unexpectedly diagnosed with a cerebral arteriovenous malformation.
Over the past five years, I have undergone numerous tests and treatments.
However, at the beginning of last year, I started experiencing gradual numbness in one side of my body, which has led to difficulties in walking and daily activities.
Although my arteriovenous malformation has healed, my neurological issues have been worsening.
I returned to my primary physician, but he stated that he has done all he can.
Therefore, I have been seeking other doctors and treatment options, but my condition has not improved.
It is becoming increasingly severe, and I am at a loss for where to seek further evaluation or treatment.
I would like to ask what I can do now and where I should go for further tests and treatment.
Please help me, doctor.
Thank you.
My email is [email protected].
Thank you.
Ting Ting, 20~29 year old female. Ask Date: 2007/07/02
Dr. Gao Chunde reply Neurology
In the internationally renowned academic journal "Cerebrovascular Disease," a study published in 2001 discussed that although surgical excision of cerebral arteriovenous malformations (AVMs) can be confirmed as complete through postoperative angiography, there have been cases of recurrence five years later.
Therefore, follow-up examinations are strongly recommended (Recurrence of a Cerebral Arteriovenous Malformation after Surgical Excision).
Given your symptoms and the progression of your condition, the likelihood of recurrence of the AVM or the development of new neurological lesions is quite high.
It is advisable to consult a specialist in the neurology outpatient clinic for a thorough examination and to arrange for relevant imaging studies to determine the cause and decide on treatment.
Reply Date: 2007/07/02
More Info
Dear Mimi,
I understand that you are experiencing significant challenges following your treatment for arteriovenous malformation (AVM). It can be incredibly frustrating and disheartening when you feel that your medical care has not led to the improvements you hoped for, especially when dealing with neurological issues that affect your daily life.
First and foremost, it’s important to acknowledge that neurological complications can arise after AVM treatment, even if the AVM itself has been successfully treated. Symptoms such as numbness, difficulty walking, and other neurological deficits can be a result of the AVM itself, the treatment process, or other underlying conditions. It’s crucial to have a comprehensive evaluation to determine the exact cause of your symptoms.
Here are some steps you can consider taking:
1. Seek a Neurologist: If you haven’t already, consult with a neurologist who specializes in post-AVM care or neurovascular conditions. They can provide a thorough neurological examination and may recommend imaging studies such as MRI or CT scans to assess the current state of your brain and nervous system.
2. Physical Therapy: Engaging in physical therapy can be beneficial for improving mobility and strength. A physical therapist can design a personalized rehabilitation program to help you regain function and manage symptoms like numbness and difficulty walking.
3. Occupational Therapy: If your daily activities are being affected, occupational therapy can help you adapt to your current abilities and improve your quality of life. Occupational therapists can provide strategies and tools to assist with daily tasks.
4. Pain Management: If you are experiencing pain or discomfort, a pain management specialist can help you explore options for relief. This may include medications, nerve blocks, or other interventions.
5. Multidisciplinary Approach: Consider seeking care at a specialized center that offers a multidisciplinary approach to neurological rehabilitation. This may include a team of neurologists, rehabilitation specialists, psychologists, and other healthcare professionals who can work together to address your complex needs.
6. Support Groups: Connecting with others who have experienced similar conditions can provide emotional support and practical advice. Look for local or online support groups for individuals with AVM or neurological issues.
7. Second Opinion: If you feel that your current treatment plan is not effective, it’s perfectly reasonable to seek a second opinion from another specialist. Different doctors may have different approaches and insights that could be beneficial for your situation.
8. Lifestyle Modifications: While medical interventions are crucial, lifestyle changes such as a balanced diet, regular exercise (as tolerated), and stress management techniques can also play a significant role in your overall well-being.
9. Follow-Up Care: Regular follow-ups with your healthcare providers are essential to monitor your condition and make necessary adjustments to your treatment plan.
10. Mental Health Support: Dealing with chronic health issues can take a toll on your mental health. Consider speaking with a mental health professional who can help you cope with the emotional aspects of your condition.
In conclusion, while it may feel overwhelming, there are various avenues you can explore to seek relief and improve your quality of life. Don’t hesitate to advocate for yourself and seek out the care you need. Your health and well-being are paramount, and there are professionals who can help you navigate this challenging journey.
Wishing you strength and healing,
Doctor Q&A Teams
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