Navigating Chronic Pain: Seeking Answers Beyond Traditional Medicine - Family Medicine

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Hello Dr.
Chen,
Four years ago, I experienced a sudden onset of severe back pain during the winter, which left me unable to get out of bed.
Over the past four years, I have consulted various orthopedic specialists who have stated that there is no significant issue.
Traditional Chinese medicine practitioners have suggested that my body is weak.
Endocrinologists have indicated that my hormone levels are relatively normal.
Rehabilitation specialists have expressed that they are unable to assist me.
Pain management specialists have thrown their hands up in despair, leaving me wondering what to do next.

Subsequently, I visited the rheumatology department at Chang Gung Memorial Hospital, where tests ruled out lupus and rheumatic arthritis.
I have been taking pain medication for over a year with little effect and have stopped for the past two months.
I have received numerous pain injections, both intravenous and intramuscular, all of which have been ineffective.
I find invasive treatments, such as acupuncture and trigger point injections, intolerable.

Originally, I weighed 51 kg at a height of 155 cm, but I now weigh only 39-40 kg.
I appear pale and extremely weak.
Since the onset of my illness, I have experienced amenorrhea, and some of my original symptoms persist, including back pain, weakness, occasional low-grade fever, fatigue, night sweats, and discoloration of my fingers and toes, which are often cold and either gray or purple.
My tongue shows purplish spots, and I experience rapid heart rate.

The uncertainty of my condition has made my relationship with healthcare institutions feel precarious, as I am often advised to undergo thorough examinations.
However, my experience tells me that doctors tend to listen to patients without providing clear guidance.
The focus should not only be on which specialty to consult but also on how to articulate my symptoms and what direction to take for further testing.

I appreciate any guidance you can provide, and I am very grateful for your help.

Claire, 40~49 year old female. Ask Date: 2009/02/17

Dr. Chen Mengkan reply Family Medicine


Hello: Based on the symptoms you have described, it is still unclear what is causing your discomfort.
I would recommend that you organize your symptoms, including the frequency of episodes, any aggravating or alleviating factors, and the location of associated pain.
Then, consult a trusted physician or family doctor to clarify your symptoms and conduct further examinations for verification.

Reply Date: 2009/02/17

More Info


Navigating chronic pain can be an incredibly challenging journey, especially when traditional medical approaches seem to yield little relief. Your experience of severe back pain that has persisted for four years, along with the various consultations you've had across multiple specialties, highlights a common frustration faced by many chronic pain patients. It’s crucial to understand that chronic pain can be multifaceted, often requiring a comprehensive and multidisciplinary approach to management.

Firstly, it’s important to recognize that chronic pain may not always have a clear physical cause that can be identified through standard imaging or laboratory tests. Conditions like fibromyalgia, chronic fatigue syndrome, or other pain syndromes may not show up on traditional tests but can cause significant discomfort and disability. Given your symptoms, including fatigue, weight loss, and changes in skin color, it may be beneficial to explore these possibilities further.

Since you mentioned that you have already consulted various specialists, including rheumatology and pain management, it might be worthwhile to consider a few additional steps:
1. Comprehensive Pain Assessment: Seek out a pain specialist who can conduct a thorough assessment of your pain. This should include not only a physical examination but also a detailed history of your pain, its onset, characteristics, and any associated symptoms. A multidisciplinary pain clinic may offer a more holistic approach, combining physical therapy, psychological support, and medication management.

2. Psychological Support: Chronic pain can lead to psychological distress, including anxiety and depression, which can exacerbate the perception of pain. Cognitive-behavioral therapy (CBT) has been shown to be effective in managing chronic pain by helping patients develop coping strategies and altering negative thought patterns associated with pain.

3. Physical Therapy and Rehabilitation: While you mentioned that rehabilitation has not been helpful, it may be worth exploring different types of physical therapy, such as aquatic therapy or specialized pain management programs that focus on gentle movement and strengthening exercises tailored to your abilities.

4. Alternative Therapies: Some patients find relief through alternative therapies such as acupuncture, chiropractic care, or massage therapy. While these may not work for everyone, they can be part of a broader pain management strategy.

5. Lifestyle Modifications: Incorporating regular, gentle exercise, maintaining a balanced diet, and ensuring adequate sleep can have a significant impact on overall well-being and pain levels. Mindfulness and relaxation techniques, such as yoga or meditation, can also help manage stress and improve pain perception.

6. Further Investigations: If you feel that your symptoms warrant it, consider asking for further investigations that may not have been previously explored. This could include imaging studies like MRI or CT scans to look for any structural issues, or blood tests to check for inflammatory markers or autoimmune conditions that may have been overlooked.

7. Patient Advocacy: It’s essential to advocate for yourself in the healthcare system. Prepare for your appointments by documenting your symptoms, their impact on your daily life, and any treatments you have tried. This information can help guide your discussions with healthcare providers and ensure that your concerns are taken seriously.

In conclusion, navigating chronic pain requires persistence and a willingness to explore various treatment avenues. It’s essential to find a healthcare team that listens to your concerns and works collaboratively with you to develop a comprehensive pain management plan. Remember, you are not alone in this journey, and there are resources and support systems available to help you manage your pain more effectively.

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