Seeking Relief: A Father's Struggle with Chronic Pain and Urinary Issues

a person in excruciating pain

Hello Doctor: My father suffered a back injury 17 years ago and received an injection in his buttocks, which unfortunately damaged his nerves, resulting in paralysis of both legs and inability to urinate.
He has been using a urinary catheter every day since then, changing it once a month.
Additionally, he has a history of anal fissures and unexplained pain, making it uncomfortable for him to stand, sit, or lie down.
He was hospitalized for treatment at that time.
We are open to trying any recommendations for treatment.
He has undergone examinations including cervical spine imaging, sialography, and laser treatment for anal fissures.
He also requires surgery every three years to remove stones from the urethra due to the lack of normal urination, and the area where the catheter is placed often becomes inflamed.
Sometimes he even experiences fecal incontinence.
We have also tried alternative therapies such as acupuncture, cupping, massage, reflexology, and qigong.
We consulted with fortune tellers and feng shui practitioners.
Chang Gung Memorial Hospital and Taipei Medical University Hospital were unable to determine the cause of his condition and suggested follow-up treatment.
Due to his prolonged illness, he is now experiencing moderate depression and is receiving treatment at this hospital.
With advancements in technology, we have renewed hope that current equipment can identify the underlying issues and provide targeted treatment.
We would like to schedule an appointment but are unsure which department to go to.
We also want to undergo a health check but do not know where to start.
We hope the doctor can assist us.
If there are any doctors who can help alleviate my father's suffering, please let us know; we would be extremely grateful.
Given my father's condition, surgery may not be suitable at this time.
Thank you for your patience in listening to my concerns.
Thank you!

Wúzhù de rén, 40~49 year old female. Ask Date: 2009/03/13

Dr. Lai Ronghao reply Urology

According to what you mentioned, your father’s inability to urinate may be due to neurogenic bladder dysfunction, which is generally considered irreversible.
However, it can be managed with medication and catheterization to alleviate the issue.
It is recommended that you take your father to a urologist for evaluation and treatment.

Reply Date: 2009/03/13

More Info

I'm truly sorry to hear about your father's ongoing struggles with chronic pain and urinary issues. It sounds like he has been through a lot over the past 17 years, and it's understandable that both he and your family are feeling overwhelmed by the situation. Chronic pain, especially when combined with complications like urinary retention and infections, can significantly impact a person's quality of life and mental health.

Given your father's history of a nerve injury leading to paralysis and his current reliance on a urinary catheter, it's crucial to approach his care with a comprehensive plan. Here are some steps and considerations that may help you navigate this challenging situation:
1. Specialist Consultation: Since your father has multiple complex issues, it would be beneficial to consult with specialists in different fields. A neurologist can evaluate the nerve damage and assess any potential treatments to alleviate pain or improve function. A urologist is essential for managing urinary issues, especially since he has a history of urinary retention and catheter use. They can also address any infections or complications arising from catheter use.

2. Pain Management: Chronic pain management is a multidisciplinary approach. A pain specialist or anesthesiologist who focuses on pain management can offer various treatments, including medications, nerve blocks, or other interventional procedures. They may also recommend physical therapy to help manage pain and improve mobility.

3. Mental Health Support: Given that your father is experiencing moderate depression due to his chronic conditions, it's vital to address his mental health. A psychiatrist or psychologist can provide therapy and medication management to help him cope with his feelings of despair and improve his overall mental well-being. Support groups for chronic pain or disability can also provide emotional support and practical advice from others in similar situations.

4. Diagnostic Testing: If there are unresolved issues regarding his pain and urinary problems, it may be worth discussing advanced imaging studies, such as MRI or CT scans, to identify any underlying issues that may have been missed previously. This can help guide treatment options.

5. Holistic Approaches: While traditional medicine is essential, some patients find relief through complementary therapies. Techniques such as acupuncture, massage therapy, or mindfulness practices can sometimes help alleviate pain and improve emotional well-being. However, it's crucial to discuss these options with his healthcare team to ensure they are safe and appropriate for his condition.

6. Lifestyle Modifications: Encourage your father to engage in gentle physical activity as tolerated, as this can help improve mood and physical function. Additionally, a balanced diet and staying hydrated can support overall health and may help with urinary issues.

7. Regular Follow-ups: Establishing a routine of regular follow-ups with his healthcare providers can help monitor his conditions and adjust treatments as necessary. This ongoing communication is vital for managing chronic conditions effectively.

8. Family Support: As a family member, your support is invaluable. Encourage open communication with your father about his feelings and experiences. Sometimes, just being there to listen can make a significant difference in his emotional state.

In conclusion, navigating your father's complex health issues will require a coordinated approach involving multiple specialists. Don't hesitate to advocate for his needs and seek out the best possible care. Remember, you are not alone in this journey, and there are resources and professionals available to help both your father and your family cope with these challenges.

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