Ankylosing Spondylitis: Is It Considered a Major Disability? - Internal Medicine

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Is ankylosing spondylitis considered a major illness or disability?


Hello, doctor.
I am a female patient with ankylosing spondylitis (AS), diagnosed 12 years ago in my first year of high school.
Both prolonged standing and sitting exacerbate my discomfort, and my lower back pain also affects my emotional well-being, necessitating assistance from a mental health specialist.
I was diagnosed at Wan Fang Hospital 12 years ago, but due to the side effects of medication, I experienced gastrointestinal bleeding that nearly led to perforation.
Subsequently, the doctor could only prescribe painkillers, which have not provided substantial relief.
Currently, I feel very distressed due to financial pressures.
My mother suffered from systemic lupus erythematosus for over a decade and passed away three years ago.
I do not understand why ankylosing spondylitis, which is also an autoimmune rheumatic disease, is not classified as a major illness or eligible for disability certification.
What specific complications must be present for this to be recognized? Thank you, doctor.

Ziran, 20~29 year old female. Ask Date: 2017/11/18

Dr. Zeng Guosen reply Internal Medicine


1.
Major illnesses are defined by specific diagnoses, and ankylosing spondylitis is not included, regardless of severity.

2.
Disability is determined by the degree of functional impairment, regardless of the diagnosis.
If ankylosing spondylitis affects spinal fusion and limits mobility, a medical evaluation can be conducted to issue a disability certificate.

3.
There are new treatments for ankylosing spondylitis, including biologic therapies, which can effectively control the condition without relying solely on pain medications.
It is recommended to consult a rheumatologist for an assessment of treatment feasibility.
Thank you for your question.

Reply Date: 2017/11/18

More Info


Ankylosing Spondylitis (AS) is a chronic inflammatory disease primarily affecting the spine and the sacroiliac joints, leading to pain and stiffness. Over time, it can result in the fusion of the vertebrae, which significantly limits mobility. Your experience as a female AS patient for 12 years highlights the profound impact this condition can have on daily life, including physical discomfort and emotional distress.

To address your question regarding whether AS is considered a major disability, it is essential to understand how disabilities are classified and assessed. In many healthcare systems, including the United States, the classification of a condition as a "major disability" often depends on its impact on a person's ability to perform daily activities and work. While AS can lead to significant limitations, the criteria for classifying a condition as a major disability can vary widely.

In the context of Ankylosing Spondylitis, the following points are crucial:
1. Severity and Progression: The severity of AS can vary significantly among individuals. Some may experience mild symptoms that can be managed with medication and physical therapy, while others may have severe, debilitating symptoms that affect their quality of life. The progression of the disease can also influence its classification as a disability.

2. Functional Limitations: The impact of AS on daily functioning is a critical factor. If the condition severely limits your ability to perform essential tasks, such as standing, sitting, or engaging in physical activities, it may be more likely to be recognized as a disability. The presence of chronic pain, fatigue, and emotional distress can further complicate the situation.

3. Comorbidities: The presence of other health conditions, such as gastrointestinal issues or mental health concerns, can exacerbate the challenges faced by AS patients. In your case, the history of gastrointestinal bleeding and the need for psychological support indicate that AS is not just a physical ailment but also has significant emotional and psychological ramifications.

4. Healthcare System Policies: Different countries and healthcare systems have varying policies regarding disability classification. In some cases, specific criteria must be met for a condition to be recognized as a major disability. This may include the presence of certain complications or the need for ongoing medical treatment.

5. Documentation and Advocacy: If you believe that your condition should be classified as a major disability, it may be beneficial to gather comprehensive medical documentation that outlines the severity of your symptoms, the impact on your daily life, and any treatments you have undergone. Working with healthcare providers who understand the complexities of AS can help advocate for your needs.

6. Support Resources: Organizations dedicated to autoimmune diseases and chronic pain can provide valuable resources and support. Connecting with others who have similar experiences can also be beneficial for emotional support and practical advice.

In conclusion, while Ankylosing Spondylitis can lead to significant disability, the classification as a "major disability" depends on various factors, including the severity of symptoms, functional limitations, comorbidities, and healthcare policies. It is essential to communicate openly with your healthcare providers about your experiences and seek support from relevant organizations to navigate the challenges associated with AS. Your situation is complex, and it is crucial to have a supportive healthcare team that understands the multifaceted nature of your condition.

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