Congenital Torticollis: Treatment Options and Disability Benefits

Congenital torticollis

Hello, doctor.
I am 30 years old this year! I have had congenital torticollis (tilting to the right) since birth.
My parents took me for surgery to remove the muscle when I was three years old, but I did not undergo rehabilitation for correction.
As a result, I have been tilted since childhood until now.
During my military service, I was unable to stand for long periods and had an X-ray done at Taoyuan Military Hospital, which diagnosed me with severe scoliosis, leading to an exemption from service.
However, as I grew older, I gradually noticed strabismus, facial asymmetry, and uneven ears, although these conditions are not easily noticeable at first glance.
I often experience lower back pain and discomfort from standing for extended periods.
I would like to ask the doctor what treatment options are available for me now.
Is surgery a possibility? Additionally, can I apply for a disability certificate under these circumstances?

A Chang, 30~39 year old female. Ask Date: 2010/05/19

Dr. Lai Yanting reply Rehabilitation

1.
Severe scoliosis greater than 40 degrees should be considered for surgical treatment—please consult an orthopedic surgeon for evaluation.

2.
Lower back pain can be improved with good posture and rehabilitation therapy.

3.
It is not possible to apply for a disability certificate for idiopathic scoliosis.
Thank you.

Reply Date: 2010/05/19

More Info

Congenital torticollis, also known as congenital muscular torticollis, is a condition that occurs when the sternocleidomastoid muscle, which runs along the side of the neck, is shortened or tight. This results in the head tilting to one side, and it can lead to various complications if not treated properly. In your case, it seems that the initial surgical intervention at the age of three did not include rehabilitation, which is crucial for optimal recovery and function.

Treatment Options
1. Physical Therapy: The first line of treatment for congenital torticollis is physical therapy. A physical therapist can provide exercises that stretch the tight muscles and strengthen the weak ones. This can help improve neck mobility and alignment. Since you have been living with this condition for many years, a tailored rehabilitation program focusing on your specific needs, including posture correction and strengthening exercises, would be beneficial.

2. Surgical Options: While you have already undergone surgery to release the tight muscle, additional surgical options may be available depending on the severity of your current symptoms and the degree of functional impairment. A consultation with an orthopedic surgeon specializing in neck and spine conditions would be necessary to evaluate whether further surgical intervention could help alleviate your symptoms, such as the facial asymmetry and spinal issues you mentioned.

3. Chiropractic Care: Some individuals find relief through chiropractic adjustments, which can help with spinal alignment and reduce discomfort. However, it is essential to consult with a healthcare provider before starting chiropractic treatment, especially given your history of scoliosis.

4. Pain Management: For the chronic pain you experience, a pain management specialist can help devise a plan that may include medications, injections, or alternative therapies such as acupuncture.

Disability Benefits
Regarding your inquiry about disability benefits, the eligibility for such benefits often depends on the severity of your condition and how it affects your daily life. In the United States, the Social Security Administration (SSA) has specific criteria for determining disability. Conditions that significantly impair your ability to work or perform daily activities may qualify you for benefits.

1. Documentation: To apply for disability benefits, you will need comprehensive medical documentation that outlines your condition, treatments received, and how it affects your daily life. This includes records from your surgeries, physical therapy, and any other treatments you have undergone.

2. Consultation with a Specialist: It may be beneficial to consult with a disability attorney or advocate who can help you navigate the application process and ensure that you present a strong case for your eligibility.

3. Application Process: The application process can be lengthy and may require appeals if initially denied. Be prepared to provide detailed information about how your condition limits your ability to work and perform daily activities.

Conclusion
In summary, while congenital torticollis can lead to various complications, there are treatment options available that can help improve your quality of life. Engaging in physical therapy and consulting with specialists for potential surgical options are crucial steps. Additionally, exploring disability benefits may provide you with the support you need to manage your condition effectively. It is essential to work closely with healthcare providers who understand your history and can guide you through the treatment and application processes.

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