Effective Treatments for Congenital Torticollis: A Patient's Guide - Rehabilitation

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Treatment for Torticollis


Hello Doctor: I have congenital torticollis.
My parents took me for rehabilitation and massage when I was young, and now my neck can move freely, but there is still a hard lump on the right side of my neck.
Since high school, I have noticed that I have obvious symptoms such as facial asymmetry and squinting.
What can I do to improve this condition? Which specialty should I consult? Thank you, Doctor.

Zhong Xiansheng, 10~19 year old female. Ask Date: 2024/01/29

Dr. Su Hongci reply Rehabilitation


Hello: It is recommended to visit a medical facility that has a rehabilitation department for consultation.
Wishing you good health.

Reply Date: 2024/01/29

More Info


Congenital torticollis, also known as "wry neck," is a condition present at birth that results in the head being tilted to one side due to the shortening or tightening of the sternocleidomastoid muscle in the neck. This condition can lead to asymmetrical facial features and neck stiffness if not properly addressed. It is commendable that you have already undergone physical therapy and massage, which are common initial treatments for this condition. However, the presence of a hard lump on the right side of your neck and the noticeable asymmetry in your facial features indicate that further evaluation and treatment may be necessary.


Effective Treatments for Congenital Torticollis
1. Physical Therapy: Continuing physical therapy is crucial. A physical therapist can provide targeted exercises to improve neck flexibility and strength. They may also employ techniques such as stretching and manual therapy to help alleviate tightness in the affected muscles.

2. Occupational Therapy: An occupational therapist can assist in developing strategies to improve daily functioning and may provide adaptive techniques to help with any limitations caused by the condition.

3. Botulinum Toxin Injections: In some cases, botulinum toxin (Botox) injections may be used to temporarily paralyze the overactive muscle, allowing for improved positioning and function. This treatment is typically considered when conservative measures have not yielded satisfactory results.

4. Surgery: If conservative treatments fail to improve the condition, surgical intervention may be an option. Surgery can involve lengthening the sternocleidomastoid muscle or releasing the tightness to allow for better head positioning. This is usually considered in older children or adults when significant functional or cosmetic issues persist.

5. Orthotic Devices: In some cases, a neck brace or orthotic device may be recommended to help maintain proper head positioning and support the neck during the healing process.


Recommendations for Consultation
Given your symptoms, it would be advisable to consult with a specialist in one of the following fields:
- Pediatric Orthopedics: If you are still a minor or if the condition is being evaluated in a child, a pediatric orthopedic surgeon can assess the condition and recommend appropriate treatments.

- Physical Medicine and Rehabilitation (PM&R): A PM&R specialist can provide a comprehensive evaluation and develop a rehabilitation plan tailored to your needs.

- Otolaryngology (ENT): An ENT specialist can evaluate any associated issues with the neck and throat that may be contributing to your symptoms.

- Plastic Surgery: If there are significant cosmetic concerns due to facial asymmetry, a plastic surgeon with experience in craniofacial procedures may be able to offer options for improvement.


Conclusion
It is essential to address congenital torticollis early and comprehensively to prevent long-term complications. Since you have already experienced some improvement through physical therapy, continuing with these treatments while exploring additional options, such as those mentioned above, can help you achieve better outcomes. Be sure to communicate openly with your healthcare providers about your concerns and the specific symptoms you are experiencing, as this will guide them in developing the most effective treatment plan for you.

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