Torticollis: Causes, Treatments, and Next Steps - Rehabilitation

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My head is tilted to the left, and I am having difficulty moving. Please help me?


In March 2022, I experienced menopause and simultaneously discovered that I could not control my head tilting to the left.
An MRI showed no abnormalities, and I was diagnosed with torticollis at Chang Gung Memorial Hospital.
However, I received Botox injections twice with no effect.
During my visits to the rehabilitation department and physical therapist, it was found that the right sternocleidomastoid muscle was protruding, stiff, and cramping.
I also observed that whenever I walked and my head tilted to the left, the right sternocleidomastoid muscle would swell, stiffen, and protrude.
As I forcefully turned my head to the right, the sternocleidomastoid muscle gradually became soft and flat, but soon after, I could not control my head from tilting to the left again.

Could the head tilt be due to the stiffness of the sternocleidomastoid muscle? The rehabilitation department advised me to stretch and apply heat, but neither has been effective.
Which other specialty should I consult? Can you recommend an experienced doctor? Are there any assistive devices that could help me walk normally?

Ms. Li, 50~59 year old female. Ask Date: 2023/01/16

Dr. Wang Zhaomin reply Rehabilitation


The sternocleidomastoid muscle is associated with neck rotation, and related lesions can lead to abnormal head control.
Heat therapy and stretching exercises can help alleviate muscle tension.
It is recommended to consult a neurologist or a rehabilitation specialist for an accurate diagnosis and appropriate treatment plan.

Reply Date: 2023/01/16

More Info


Torticollis, also known as cervical dystonia, is a condition characterized by an abnormal, often painful, twisting of the neck that can result in the head being tilted to one side. Understanding the causes, treatments, and next steps for managing this condition is crucial for improving quality of life.


Causes of Torticollis
Torticollis can arise from various factors, including:
1. Muscle Spasms: The sternocleidomastoid muscle, which runs from the sternum and clavicle to the mastoid process of the skull, is often involved. In your case, the tightness and spasms of this muscle may be contributing to the head tilt.


2. Neurological Conditions: While your MRI showed no abnormalities, some forms of torticollis can be linked to neurological disorders that affect muscle control.

3. Injury or Trauma: Previous injuries to the neck or head can lead to muscle imbalances and spasms.

4. Genetic Factors: Some individuals may have a hereditary predisposition to develop torticollis.

5. Postural Issues: Poor posture over time can lead to muscle imbalances that may result in torticollis.


Treatments for Torticollis
1. Physical Therapy: This is often the first line of treatment. Stretching and strengthening exercises can help alleviate muscle tightness. It seems you have already been referred to physical therapy, which is a positive step.

2. Botulinum Toxin Injections: While you mentioned that Botox injections have not been effective for you, they are commonly used to relax the affected muscles in many patients.

3. Medications: Muscle relaxants or anticholinergic medications may be prescribed to help reduce muscle spasms.

4. Heat Therapy: Applying heat can help relax tight muscles, although you noted that this has not provided relief for you.

5. Surgery: In severe cases where other treatments fail, surgical options may be considered to cut the affected muscles or nerves.


Next Steps
Given that your current treatments have not yielded satisfactory results, consider the following steps:
1. Consult a Specialist: If you haven't already, seeing a neurologist who specializes in movement disorders may provide additional insights. They can evaluate your condition in detail and suggest alternative treatments.

2. Explore Alternative Therapies: Some patients find relief through acupuncture, chiropractic care, or osteopathic manipulation. These therapies may help address muscle tightness and improve neck mobility.

3. Consider a Multidisciplinary Approach: Engaging a team that includes a physical therapist, neurologist, and possibly a pain management specialist can provide a comprehensive treatment plan.

4. Assistive Devices: While there may not be a specific "device" to correct torticollis, some patients benefit from neck braces or supports that can help stabilize the head and neck during activities.

5. Lifestyle Modifications: Pay attention to your posture, especially during activities like walking or sitting for prolonged periods. Ergonomic adjustments in your workspace may also help.


Conclusion
Torticollis can be a challenging condition to manage, especially when initial treatments do not provide relief. It is essential to continue working with healthcare professionals to explore all available options. Keeping a detailed record of your symptoms, treatment responses, and any changes in your condition can be beneficial for your healthcare team in tailoring an effective treatment plan. Don't hesitate to seek second opinions or explore new therapies as you navigate this condition.

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