Adult torticollis
I have had torticollis (tilted neck) on my left side since birth.
I underwent two surgeries when I was around one and a half to two years old, but my condition has not improved, and the torticollis has continued to accompany me as I grew up.
From last year to this year, I have visited numerous outpatient clinics, including orthopedics, rehabilitation, and traditional Chinese medicine.
I have also searched online, but the responses I received were quite varied.
What I most want to improve is the asymmetry of my facial features; my right cheek is larger and appears more elevated overall, while my left side is relatively flatter with a smaller cheek.
The difference in the extent of my smile is also noticeable, making it even more apparent in photos, which has significantly affected my self-confidence.
Additionally, I have been experiencing recent neck pain due to tightness.
Some doctors have suggested that surgery is necessary for a permanent solution, but that cosmetic procedures would be needed for appearance improvement.
Others have mentioned that rehabilitation over about six months could lead to recovery and even changes in appearance.
I have also found information online about using botulinum toxin as a treatment option.
I would like to know which method is truly effective for a comprehensive improvement.
Guozi, 10~19 year old female. Ask Date: 2016/04/27
Dr. Yin Xinbei reply Rehabilitation
At 17 years old, facial features have fully developed, and any changes can only be achieved through cosmetic procedures.
Botox has only a temporary effect; for a permanent solution, surgical intervention is necessary! Recent neck pain caused by tightness can be improved through physical therapy and stretching exercises.
Reply Date: 2016/04/27
More Info
Understanding and treating adult torticollis, particularly when it leads to facial asymmetry, can be a complex process. Torticollis, or "wry neck," is a condition characterized by an abnormal, asymmetrical head or neck position. It can be congenital (present at birth) or acquired due to various factors, including muscle spasms, neurological conditions, or trauma. In your case, it appears that you have been dealing with congenital torticollis since childhood, which has led to persistent facial asymmetry.
Treatment Options for Torticollis and Facial Asymmetry
1. Surgical Intervention: Given your history of surgeries at a young age, it’s understandable that you might be considering this option again. Surgical procedures for torticollis typically involve lengthening or releasing tight muscles (like the sternocleidomastoid) that contribute to the abnormal head position. While surgery can provide significant relief and improve neck posture, it may not always address facial asymmetry directly. The results can vary, and some patients may still require additional treatments for cosmetic concerns.
2. Physical Therapy: Rehabilitation through physical therapy is often recommended for torticollis. A physical therapist can design a personalized program that includes stretching and strengthening exercises aimed at improving neck mobility and reducing muscle tightness. While physical therapy may not completely resolve facial asymmetry, it can help alleviate discomfort and improve overall function. Some patients report noticeable improvements in their appearance after consistent therapy, especially if they combine it with other treatments.
3. Botulinum Toxin Injections: Botulinum toxin (commonly known as Botox) has been used effectively to treat muscle spasms associated with torticollis. By injecting Botox into the affected muscles, it can temporarily weaken them, allowing for better neck positioning and potentially reducing asymmetry. This treatment is less invasive than surgery and can be repeated as needed. However, it is essential to consult with a specialist experienced in this treatment to determine if it is suitable for your specific case.
4. Cosmetic Procedures: For facial asymmetry, cosmetic interventions such as fillers or surgical options like facial implants may be considered. These procedures can help balance facial features and improve self-esteem. However, they do not address the underlying muscle issues related to torticollis. It’s crucial to have realistic expectations and understand that cosmetic procedures should ideally complement other treatments aimed at correcting the underlying condition.
5. Alternative Therapies: Some individuals explore alternative treatments such as acupuncture, chiropractic care, or osteopathy. While these methods may provide relief for some, scientific evidence supporting their effectiveness in treating torticollis and facial asymmetry is limited. It’s essential to approach these options with caution and consult with healthcare professionals.
Conclusion
The best approach to managing your condition will likely involve a combination of treatments tailored to your specific needs. Consulting with a multidisciplinary team, including orthopedic specialists, physical therapists, and cosmetic surgeons, can provide a comprehensive treatment plan. It’s essential to communicate your goals clearly, particularly regarding both functional improvement and cosmetic concerns.
While there is no one-size-fits-all solution, many patients find that a combination of physical therapy, possibly Botox injections, and cosmetic enhancements can lead to significant improvements in both neck function and facial symmetry. Always ensure that any treatment plan is discussed thoroughly with qualified healthcare providers who can guide you based on the latest medical evidence and your individual circumstances.
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